The Agrawal Story
"We like having someone on the end of the phone to be able to speak to when we have any questions or problems."
Garima’s and Anurag children Aayushi and Ojas both have the same condition, Spastic Tetraplegia. Aayushi is 13 years old and Ojas just 2 years old. Anurag works away at
times and very long hours to support the family financially. The Trust have supported the family for the last year and a half. The condition means they are unable to move independently as all four limbs are affected, they become very rigid and unable to move freely, they also have limited sight. So they both need constant support and care. The family are supported by carers, but obviously not for the full 24 hours. This means Garima has little time and support for her self.
Due to the nature of the children’s complex needs, the Trust are unable to support the family with their medical care needs, but are able to support the family in so many other ways.
Aayushi attends school daily, but as Ojas is still only 2 years old, he needs to be cared for for 24 hours, along with carers support at times. The Trust have been able to provide practical support by driving them to hospital appointments to ease the burden on Garima. The family’s Outreach Worker also accompanies the carer to swimming lessons/ or sensory play sessions for Ojas , which then allows Garima to have time alone and catch up on rest or treat herself to some Wellbeing either at home or in the Trust’s Hub. Garima has also attended some Chill & Chat events and has also brought Ojas to music therapy sessions in the day, where again she can talk and have some time out.
Aayushi and Ojas are always invited to events that they can both attend and Dad Anurag has also participated in the Trust’s Dad’s events such as Go-kart racing.
The emotional, social and practical support has and still is being offered by the families Outreach Worker, to give them a better quality of life they may not be able access elsewhere.