Here for families of seriously-ill children. Always.

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The Fleetwood’s Story

"We have looked at Hospices and as great as it would be for us to stay there for a break as they do everything which would give Lorraine some respite, the facilities aren't as welcoming or as nice as The Bluebells. Even though we would still have to look after Jacob, it would give us a chance to have some quality time as a family. There is so much spcae for all the boys and the pool will be fantastic for all 3 of them." - Nigel Fleetwood

The Fleetwood Family joined the Trust family in February 2016. Youngest son Jacob, 3 years old, has Cerebral Palsy, seizures and chronic lung disease. The family consists of Mufleetwoodm Lorraine, Dad  Nigel and two other boys – Coby 9 years old (who has Congenital Adrenal Hyperplasia) and Kaiden who is 8 years old.

Sebastian’s Action Trust help the family with Emotional and Sibling support. Lorraine and Nigel also receive help from other services such as Rainbow Trust, Homestart who do weekly visits and both Coby and Kaiden attend Young Carers. However, the support from the Trust is

For Lorraine, support whilst Husband Nigel is away is vital. Nigel is in the Navy and often gets postings, leaving Lorraine to look after the three boys on her own, which is quite stressful. The Trust Outreach Workers can help support Lorraine through those times.

It is also important for them to enjoy spending time together as a family. The Bluebells offers families a break away together, removing them from the strenuous hospital visits, Doctors appointments and routines.

The family are also keen on the activity days, not just for Jacob but to give Coby and Kaiden a chance of a break. The two older boys recently attended the Lego Play Day at The Bluebells with Nigel, where they all enjoyed building Superheroes out of Lego bricks and playing in the gardens at The Bluebells.

The Trust’s Christmas in July event was also a big hit with the Fleetwood family. All three boys attended and met with Santa, as well as enjoying the Pirate themed activities. Nigel said “Coming to things like Christmas in July gives us a chance to do things as a family and for the boys to all have fun outside of the house together. It’s such a wonderful atmosphere and so friendly and welcoming.”




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