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6 useful links

Useful links

Our supporters page features direct links with companies who have shown continued support to the Trust

Below are a few websites which may be useful to families who have a child with a serious illness.

Information

Cancerbackup/Macmillan Cancer Support

Macmillan Cancer Support improves the lives of people affected by cancer.  On the Cancerbackup website, you can find over 6,000 pages of up-to-date cancer information, practical advice and support for cancer patients, their families and carers.www.cancerbackup.org.uk/Cancertype/Childrenscancers

Children’s Cancer and Leukaemia Group (CCLG)

The CCLG is a national professional body responsible for the organisation of the treatment and management of children with cancer in the UK. The Group's main remit is the coordination of national and international clinical trials and a paediatric tissue bank. Other areas of activity include national cancer registration and the provision of information for patients and families.

www.cclg.org.uk

General support and advice

CLIC Sargent

CLIC Sargent is a national charity which cares for children and young people with cancer and their families – in hospital and in the community. They offer a range of services from information to specialist medical staff and free accommodation near hospitals. www.clicsargent.org.uk

Respite care and end of life support

Children’s Hospices UK 

Children’s Hospices UK offers information on children’s hospices based in the UK. It is the national charity that gives voice and support to all children’s hospice services.  Its vision is for every child and young person who is not expected to reach adulthood and their family to have access to the highest standards of children's hospice care and support close to home.

www.childhospice.org.uk

Children’s Hospice South West

Children's Hospice South West cares for children in Devon, Cornwall and Somerset with life-limiting or life-threatening conditions and provides hospice care and support for them and their families.

www.chsw.org.uk

Helen and Douglas House, Oxford      

Helen & Douglas House is a registered charity providing respite and end of life care for children and young adults with life-shortening conditions, as well as support and friendship for the whole family. Helen House opened in 1982 and was the first children’s hospice in the world. It was started by Sister Frances Dominica who is also a Patron of Sebastian’s Action Trust.

www.helenanddouglas.org.uk

Naomi House Children’s Hospice, Hampshire      

Provide respite care, terminal care and bereavement support for children and families from across the south of England.
www.naomihouse.org.uk

Shooting Star Children’s Hospice, Middlesex      

Shooting Star offers a range of care services for children and young people with life-limiting conditions and their families. These can take place in the family home, in the community and at Shooting Star House, the purpose-built facility based in Hampton, Middlesex.
www.shootingstar.org.uk

  

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