Here for families of seriously-ill children. Always.

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support for bereaved families

We understand the utter devastation that comes with the loss of a child or young person.

At Sebastian’s Action Trust, we offer continuity of care by walking alongside families of life-limited children from diagnosis, through treatment and beyond. When a child dies, we continue to hold the family as part of our ‘Butterfly Family’. Bespoke support is offered in a number of ways; one-to-one and group emotional care, time for remembrance and thanksgiving, and opportunities to meet other bereaved family members, in the knowledge that only those who have experienced such tragedy can truly understand the depths of such loss.

We do, however, recognise that many families face the loss of a much loved child or young person through other circumstances, and we aim to support in the most appropriate manner. We work collaboratively with a number of external organisations and where necessary will signpost families to other services that might offer additional support.

In addition, we retain the discretion to offer ‘butterfly breaks’ for families across the UK at our respite home, The Bluebells. Bereavement support is offered across the Southern counties of Berkshire, Buckinghamshire, Surrey, Hampshire and Oxfordshire.

To find out more about our bereavement support and advice, please email



bereavement parental support Parental Support

bereavement child and youth support Child and Youth Support

bereavement remembrance Remembrance



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