Supporting families navigating life-limiting childhood illness

At Sebastian’s Action Trust, we provide a space to rest, the strength to cope and people who understand.
We offer emotional care and support when it’s needed most.

About us

Find what you need

Search for support, information, or ways to get involved.

The impact you make

Behind every child and young person is a family, a story and a journey.
Thanks to the generosity of our supporters, we’re able to be there for families facing the unimaginable across Hampshire, Berkshire and the surrounding areas - offering care, comfort and moments of normality when they need it most.
The stories below are just a few examples of how your support brings hope and makes a real difference in the lives of the children, young people and families we support.

Our families, our stories

Meet Christopher

Our family support worker, Helen, is always checking in on us, which means so much. One moment that really stayed with me was when Christopher was in intensive care. When Helen found out, she was ready to jump straight in her car and come to the hospital just to give us a hug. I was completely blown away by that level of kindness and support. It showed us that the care given goes far beyond the events and activities - everyone truly cares about the families they support.

Separate to Christopher’s journey, I am also a butterfly mum to our beautiful daughter Daisy, who very sadly passed away in May 2024. Living with that loss is incredibly hard, and it can be difficult to find people who truly understand the depth of that raw emotion.

Jade, mum of Christopher

Our families, our stories

Meet Milo

We were referred to SAT in 2021 by our Children’s Community Nurse after our son was diagnosed with Spinal Muscular Atrophy at 5 weeks old. He has an older sister, so knowing there was somewhere that would provide support for the whole family was really important to us.

We can’t thank you enough for the support you’ve provided us with over the last five years; it has been invaluable.
Sophie, mum of Milo

How we support families

Support that reflects every family’s unique journey.
Families across Hampshire, Berkshire and the surrounding communities come to us for emotional support, practical help and the chance to spend meaningful time together when it matters most.

Restorative breaks

A place to press pause, feel at ease and simply be a family, surrounded by comfort, care and understanding.

Community

Creating space for meaningful connection, understanding and friendship when families need it most.

Therapies

Family-centred therapies that support comfort, connection and emotional balance, and offer space to breathe for the whole family.

Bereavement support

Compassionate and ongoing support for families through grief, remembrance and the years that follow.

Digital support

Flexible support that fits around hospital stays, busy days and caring, keeping families connected wherever they are.

Crisis outreach

For the moments that hit fast and hard, we’re here to help families feel held, safe and understood.

Transport

From home to appointments and back, our volunteer drivers make the ride one less thing to worry about.

How you can help

Whether you give time, raise funds, or make a donation, your support truly makes a difference to families we care for.

Donate

Every gift helps us offer care, comfort and connection to families when they need it most.

Volunteer

Give your time, share your skills and make a real difference for children and families.

Fundraise

From small ideas to big challenges, every fundraiser helps the families we support.

Feel good. Win big. Support families.

Our Joyful Moments Lottery gives you the chance to win up to £25,000 for just £1 a week, while helping families of children with life-limiting conditions get the care and support they need. Every ticket makes a difference, turning small moments of fun into real impact for families who need it most.

Red Devils tandem skydive

Fundraising events

Every fundraiser, big or small, helps families create memories that matter. Join in and be part of it.

What’s on

Check out upcoming events and fundraisers. Sign up, join in and be part of the fun.
  • Christmas in July

    Join us for Christmas in July, our annual family celebration at the iconic Ascot Racecourse!

  • Charity golf day

    Join us for a day of golf for a great cause!

  • Red Devils skydive

    Experience the thrill of a lifetime!

  • 100 miles in October

    Take on the 100 miles in October challenge and complete 100 miles in a way that works for you.