Here for families, every step of the way

Guidance, care and connection for families of children with life-limiting or life-threatening conditions, wherever you are on your journey

Get support

Sebastian’s Action Trust offers a range of tailored support for families navigating the challenges of life-limiting childhood illness and care. Whether you’re looking for guidance, a restorative break, or links to other specialist services, you’ll find information here to help you access the right support for your family.

Make a referral

If your child could benefit from our support, you can begin the referral process here. We welcome both parent and professional referrals, helping us understand your family’s needs so we can offer the most appropriate support.

Useful links

We work closely with other organisations that offer complementary support for young people and families in similar circumstances. This page brings together trusted charities, specialist services and resources you may find helpful, from respite care to inclusive activities and music therapy partners.
Explore our support options to find guidance, resources, and care designed to help your family feel understood, supported and connected.